Wednesday 26 February 2014

Breathing out and breathing in..............



Breathing out and breathing in...............

There is a space between breathing out and breathing in, when the breath and the life force is stilled, that an opportunity arises to just be. The time in this space may be only a few seconds long but if you take the opportunity to be in this space for even a few seconds you are actually being still. Applying this practice to other parts of our lives may at times feel difficult, there is pressure put on ourselves and others to do, and not to be. Sometimes though fate lends a hand.
About three weeks ago we had severe storms here in North Wales, the Met office issued the area as being code ‘red’, while what we experienced pales into insignificance compared to other countries, for us here in North Wales it was pretty wild. The storm, although predicted, seemed to blow up out of nowhere one Saturday afternoon.  I tend to ‘feel’ the weather and immediately it hit this storm felt ‘cruel’. The first bout didn’t last long, about an hour of thunder, hail, stair rod rain, wild wind and lightening. The lightening hit the hill I live on and as a result it blew my phone lines and with it my access to the internet to pieces. It also blew up my TV and my amp. When all this happened I was standing in front of my microwave and because the door was open I heard then saw electricity arc across the microwave…..if my husband hadn’t been standing next to me I know he would not have believed me. So with all my media ‘blown’, my cottage on the hill was unusually quiet, no internet, no TV, no radio, no music at all. The storm raged on and off for three weeks, the fields surrounding my cottage were flooded, neighbouring houses were damaged, trees were brought down, but because my cottage was quiet on the inside I experienced it all in a different way.
I was essentially in a breathing out and breathing in space, fate had intervened in the hurly burly of my life and I was now for the first time since I returned from Africa, feeling the planet by ‘being still’.
My initial response was to fill up the space, read, do chores, plan work schedules, faff about……but the quietness seeped into me and after a while I would allow myself to sit and watch the weather through our huge dining room window. I would stand in my garden and be hit by the wind, pelted by the rain and hail, I would inhale the cold and think to myself that this was wonderful. It was scary too, the storms were brutal but I was not afraid. I felt more love for being alive than I have felt for some time and I am truly grateful for being able to feel the storm yet remain unharmed.
For those of you who need to find that breathing out and breathing in space don’t wait for the storm, have a look and listen to this then sit back and 'be' for a while.



https://www.youtube.com/watch?v=W8X0s_Hns-Q

Monday 3 February 2014

Wrestling with Pandora’s Box

Hello all you wonderful lovely women, first off I would like to apologise to our regulars for the delay in publishing Lisas story. We had a violent storm up here in the hills last week and it blew my phone lines, tonight is the first night they have been back working sufficiently for me to have internet access. Anyhow enough of that. I am very proud to be able to publish Lisa's story, it is one of real courage and something that has made me stop and think about just being 'stoically accepting' of a bad situation. Read on ladies and don't just sit there....get up off your arses and seize the day!  Best to all of you, Dee.

Wrestling with Pandora’s Box - One Woman’s Words to help you find Hope.

I once had a career and a life in the way most of us understand it. Headlines would be enough:

Young woman makes it through her degree, lands a job, seizes some of the opportunities, progresses and even manages to learn a few things on the way. Takes time off to have a baby - wasn’t enjoying work especially anyway - loved some of the people but..

And then: Terminal diagnosis of High Grade Endometrial Stromal Sarcoma (nope - you probably won’t come across it again). Aged 34 and suddenly I had about 5 months to live the rest of my life. Care plans were ‘palliative’ and they weren't ‘curing cancer’ like the adverts on the telly were saying.

Pandora had just opened her little box and everyone else was now sat on the lid for fear Hope got out. I had a 2 year old and there was no getting my head around it. A bit like Wurzel Gummidge (if you’re old enough) I needed to swap heads to deal with the situation.

So, I started reading.

People performing best in the longevity stats turned out to have ‘fighting spirit’ (Greer, Morris & Pettingale, 1979). I didn’t. I was displaying ‘stoic acceptance’ which had a worse outcome than ‘denial’.

One thing I had already learnt though, was that copying behaviours is a good way to learn them and even eventually to make them your own. So I set about mimicking fighting behaviours - I started asking more troublesome questions. I stopped automatically joining in with the conventional wisdom behind statistics. Outliers are always culled from the statistics anyway. I set out to be one of those - to just last beyond the ‘normal distribution’ to start with.

The signs I might be able to do this, were probably already there but lying  dormant. I’d been recruited to my first job because my personality profile said I was ‘rebellious’ ! (The organisation were looking for culture change.) Now it was time to let my rebel out of the box to deal with all the other shit that had already escaped.

I read outlier’s stories - I started gently - with those who lived a few years, instead of predicted months. I read anything vaguely scientific backing up alternative therapies. I saw anyone I could for more information to nurture this new thinking. I kept reading.

Suddenly Hope was out of the box. She took some nurturing and some absolute leaps of faith but I’m here more than 13 years later to tell another outlier’s tale.

There’s more than I can cover here - I’m half way through writing my cancer story so others are inspired to find their own hope. Writing is my new but probably my final career move. I feel comfortable. I know what I’m doing. I can benefit others while enjoying so many aspects of it.


‘Real Women’s Words’ poses some questions, so I’ll do my best to answer them:

What has your life shown you?

Not to accept anything at face value! - Being open-minded saved my life. And being a bit of a rebel helped because I get a little thrill from being unconventional. 

Question, question, question. Look for different views. Make your own mind up. Herd mentality benefits the herd but not necessarily all individuals. Being the odd one out doesn’t necessarily mean you’re wrong! If you’re fighting for your life, you’re often on your own.

If you’re not what you need to be, fake it till you make it.

If you’re not what you want to be, get on with it now.

And dont wait to be rescued.

Where have your ambitions and your desires led you?

Up many garden paths! I hadn’t the courage to discover my own ambitions for many years, not that I knew what I wanted. Save one clear one: to be a good Mum. That made my diagnosis all the harder but was the ultimate motivation. My first clear goal was to get my son to school - that meant surviving an unimaginable 3 years. It has shifted now to seeing him to university and beyond.

My desire to give others hope, has finally led me to write. I have had incredible support from my husband Simon, and a number of amazing friends who have known the time would be right one day.

Where do I want to go next?

Carry on writing then write more. And then I want to be read. And when I’m read, I want the reader to know how to find Hope if ever they’ve lost her.

You can follow Lisa’s writing progress on her blog sharingthestoryblog.wordpress.com




Reference: Greer, S., Morris, T. and Pettingale, K.W. (1979). Psychological Response to Breast Cancer: Effect on Outcome.
The Lancet, 314(8146), 785-787.